XIV International Conference on Rare Diseases: “Rare diseases - our duty”
The XIV International Conference on Rare Diseases, organised by the Association of Mucopolysaccharidosis and Rare Diseases Patients, supported by the Federation of Patients from Central and Eastern Europe, under the title of: “Rare diseases – our duty” was held in Białobrzegi near Warsaw between 1st – 3rd July 2016. The aim of the conference was to spread the knowledge about rare diseases as well as to draw attention to the specific needs of people suffering from a chronic condition. The conference was attended by notable Polish and foreign researchers in the area of rare diseases, metabolic disorder specialists, geneticists, neurologists, cardiologists as well as presidents of patients associations in Poland and abroad and experts on the national health service. The team of Komtur Polska participated as well in the event, which enjoyed great popularity within the community acting for the benefit of patient with rare diseases.